Saturday, September 25, 2010

Update on Jason's condition

Liz:
Dear family & friends,

Jason went to UH again on 20 September. Sorry, for the delay in updating all of you. I realize that the updates have been lengthy and filled with medical jargon. I'm afraid this one will be the same because there are friends who just came to know about it and asked for information.


In the MRI above, there's this white longish oval shape at the C5. And beneath it, at the right side of the spinal cord, a thin, longish white shape. Those are the syrinx. The condition is known as syringomyelia. Here's how wikipedia defines syringomyelia:

"a generic term referring to a disorder in which a cyst or cavity forms within the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the spinal cord. The damage may result in pain, paralysis, weakness, and stiffness in the back, shoulders, and extremities. Syringomyelia may also cause a loss of the ability to feel extremes of hot or cold, especially in the hands. The disorder generally leads to a cape-like loss of pain and temperature sensation along the back and arms. Each patient experiences a different combination of symptoms. These symptoms typically vary depending on the extent and, often more critically, to the location of the syrinx within the spinal cord."

In Jason's case, his left arm is numbish and he's not able to feel hot and cold in that arm .


The MRI above shows a small, sort of roundish white circle (near the top of the MRI) at the T5. This is a blood clot caused by AVM. The wikipedia defines AVM :

"Arteriovenous malformation or AVM is an abnormal connection between veins and arteries, usually congenital."

Congenital means from birth. As I understand it, it's like the veins and arteries have their set 'pathways" but somehow when there's AVM, the veins or arteries may criss cross and that causes blood clots, and the docs believe, the syrinx above.

So, the UH docs are saying that the main cause is AVM.

The solution: The doc said that we can choose to leave the blood clot there and nothing might happen. However, IF it bursts, causing bleeding, the result can be catastrophic (since the clot is at T5, it may mean paralysis in the lower limbs).

Then there's also the syrinx. Leaving it might result in progression of the symptoms.

They are scheduling him for a spinal angiogram soon. They'll be able to see then, the exact location of the clot and syrinxs so that they can ascertain the level of risk in surgery.

Jason:
We believe that Jesus heals. His ministry on earth was not only to bring us to salvation, but to heal us (Luke 4:18). His crucifixion - He shed His blood for the forgiveness of our sins and to lift us from every curse; His body was bruised/broken/whipped that we might in turn receive healing (1 Peter 2:24). The Bible says it. We believe it. His Word shall come to pass. Last year, a prophet said that the devil wants to put me in a wheelchair but God will HEAL ME. We did not even know the cause of the numbness at that time. God sees all and knows all. We believe His Word.

In light of this, we have decided to look to Him 100% in faith and no longer to the doctors. Therefore, no more scans and tests. His Word is everlasting and all His promises are Yes and Amen! Pray and believe with us that the manifestation of His FINISHED WORK ON THE CROSS will come to pass SOON! Your prayers and your faith will mean much to us. In the Word, the faith of friends of the sick were commended upon by Jesus. In fact, Jesus was even amazed at one time by the faith of the centurion, whose SERVANT was sick, not him. Jesus healed the servant (Matthew 8). Your faith counts too!

Thank you for praying and believing with us. We cannot thank you enough for such support. It's good to know that we are not alone. We pray also that in all your efforts and faith, God will reward your fervency with blessings in abundance. He loves to bless!

We'll keep you updated as best we can.

Wednesday, March 24, 2010

Cutlery Racism?


My hubby brought my attention to the pic above. It was in a local hypermart's brochure. We were....kinda perplexed. Chinese spoons? Really?! I remember it being popularly referred to as a soup spoon by locals. Apparently that could've been by my generation. Possibly, the current generation notices cutlery culture (for want of a better term) and hey, the Chinese are the ones using these spoons right? So Chinese Spoons la! Some may shout, Cutlery Racism!!! (LOL) But it's just a spoon. Peace.

Signs

Sean is slowly but surely learning to read. Being the sensitive sort and afraid of failing, he's taken to quietly reading storybooks by himself rather than read out loud with me. The kindy he attends uses the phonic system and I do work with him on it at home too.

He surprised me this evening by grabbing pencil and paper and asking me for help writing a sentence. He's never done this before. This is what he wrote.

He saw that the cordless phone was not at its station and decided to make a sign and place it there. I was so proud of him.

Aidan was not to be left out and with pen and paper in hand also asked me for help. I was busy then and Sean helped him. This is the result.

Ok, so the grammar's off but I'm proud of the initiative and the fact that they worked together. :)

Friday, January 08, 2010

Atypical Aidan

It was bedtime. The time when my kids sometimes churn out weird/funny thoughts and comments. Tonight it was from Aidan.

With his manja voice he said, "Good night mummy, sweet dreams, sleep tight! (his usual bedtime saying). Thank you mummy for letting us watch the concert CD. I love mummy. Sorry, I disobeyed you just now."

A pause. And then...

"How do you feel now that I've said sorry?"

Frankly, I didn't know how to feel. I was tired, still a bit upset with his disobedience, noted that his "I love mummy" was because he got to watch the concert CD, settling in on the apology when he caught me with that question.

Nary a dull moment with my two!

The homie and his bro.

Sean the man :)